Saturday, September 28, 2013

Day 941

The knock on the door came at the right time.

As much as I work on sucking all the marrow out of life, as much as I choose to be happy despite my health, the downward spiral continues. I thought if I was cheerful enough, hid how I'm feeling enough, it would get easier. But it hasn't.

Every time I go to the rheumatologist's office I have to fill in a form that asks about the joints bothering me and the length of time that I have symptoms in the morning. 3+ hours is my standard answer but I'm on the verge of changing that to 4+ hours. The mornings are certainly the worst. The energy, the breath, the pain, the joint movements required to get out of bed and then get dressed is beyond what I can do most days.

In my futile attempt to forget my issues on weekends I head straight from bed to the sewing machine. I may not be able to breathe or get dressed or even brush my teeth for hours (and forget about putting on my shoes anymore - I've had to go to open back shoes that I can just slip on) but I can sit in a chair and feed fabric through a sewing machine.

That's where I was when the knock on the door came this morning. Hubby returned with a box and let me know I had a new best friend.

Joan from Michigan.

Guess what Joan sent our way? Looks like there is another Christmas angel out there. Thank you, Joan!

2 comments:

  1. I'm so glad people are pitching in and sending you fabric! It's wonderful! And if you have to go straight from bed to sewing machine to be in a "good place", then you do just that! Everything you do with the pain you feel makes me feel that I should do more. I always complain that I don't exercise enough and there is no reason why I shouldn't. My entire family has been sick (seems like it always happens when the kids go back to school) for the past two weeks, but when I feel better in a day or two, I'm going to go back to walking daily like I did in the summer. Even if it's just for 20 minutes up to the park and back, it makes me feels better, has helped me to lose 6 pounds already and has lowered my blood pressure, so that I don't need meds. I so wish I could take your pain away, but I think you are on the right track to just do whatever comforts you the most. Take care! ~Lisa

    p.s. What's the answer to day 935?

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