Saturday, September 28, 2013

Day 941

The knock on the door came at the right time.

As much as I work on sucking all the marrow out of life, as much as I choose to be happy despite my health, the downward spiral continues. I thought if I was cheerful enough, hid how I'm feeling enough, it would get easier. But it hasn't.

Every time I go to the rheumatologist's office I have to fill in a form that asks about the joints bothering me and the length of time that I have symptoms in the morning. 3+ hours is my standard answer but I'm on the verge of changing that to 4+ hours. The mornings are certainly the worst. The energy, the breath, the pain, the joint movements required to get out of bed and then get dressed is beyond what I can do most days.

In my futile attempt to forget my issues on weekends I head straight from bed to the sewing machine. I may not be able to breathe or get dressed or even brush my teeth for hours (and forget about putting on my shoes anymore - I've had to go to open back shoes that I can just slip on) but I can sit in a chair and feed fabric through a sewing machine.

That's where I was when the knock on the door came this morning. Hubby returned with a box and let me know I had a new best friend.

Joan from Michigan.

Guess what Joan sent our way? Looks like there is another Christmas angel out there. Thank you, Joan!


  1. I'm so glad people are pitching in and sending you fabric! It's wonderful! And if you have to go straight from bed to sewing machine to be in a "good place", then you do just that! Everything you do with the pain you feel makes me feel that I should do more. I always complain that I don't exercise enough and there is no reason why I shouldn't. My entire family has been sick (seems like it always happens when the kids go back to school) for the past two weeks, but when I feel better in a day or two, I'm going to go back to walking daily like I did in the summer. Even if it's just for 20 minutes up to the park and back, it makes me feels better, has helped me to lose 6 pounds already and has lowered my blood pressure, so that I don't need meds. I so wish I could take your pain away, but I think you are on the right track to just do whatever comforts you the most. Take care! ~Lisa

    p.s. What's the answer to day 935?